Healthcare for children with Down syndrome

Dear Supporters,

This quarter enabled families to smoothly access all our healthcare services for their children with Down syndrome as improvement was seen in the COVID situation post-vaccinations. Through the support extended by you, the following were made possible:

• 60 children benefitted from referrals KDSP made to the Down Syndrome Clinic at our partner organization – the Aga Khan University Hospital (AKUH), where they were able to receive appropriate medical intervention from renowned specialists
• 17 medical tests were facilitated at AKUH through KDSP’s referrals
• 4 children’s life-saving and life-enhancing medical procedures were facilitated at AKUH, sponsored by KDSP
• 16 children benefitted from the Developmental Pediatrics Consulting Clinic at KDSP led by Dr. Sidra, a renowned Developmental Pediatrician.
  
  

Some stories from the field

Muneeb was 4 months old when he came to KDSP with an unclosed hole in his heart. His parents reached out to KDSP for support and guidance. After referring with the team of doctors at AKUH, Muneeb was diagnosed with Complete Atrioventricular Septal Canal Defect (CAVC) by Dr. Babar. KDSP and AKUH decided to co-sponsor Muneeb’s surgery. Prior to his scheduled heart surgery, Muneeb also fell sick and underwent treatment for pneumonia and blood infection. As soon as he recovered and regained his strength, Muneeb was admitted for surgery in August 2021 to close his CAVC.

Ali is a 1 year old boy with Down syndrome, diagnosed with an autoimmune disorder. Ali’s doctors prescribed him an IVIG treatment for 2 years of his life to help boost his immunity until his immune system is able to improve its functioning. Since September 2021 Ali continues to receive monthly IVIG injections sponsored by KDSP to help him build his immunity and sustain his life.

Umaima was 1 year and 8 months old when she came to KDSP with complaints of heart issues. After consultation with Dr. Babar at AKUH, Umaima was diagnosed with an unclosed hole in her heart. Before proceeding ahead with surgery, Umaima was put on medication and had an angiography in October 2021 sponsored by KDSP in order to help assess the best way forward for Umaima. She has fully recovered since her procedure and awaits further decision.

Your unwavering support keeps us going in our mission of contributing towards healthier and happier lives of children with Down syndrome.

Love,

Team KDSP